Author(s):
Ronita serrao, Thereza Mathias, Shivakumara. J
Email(s):
ronitaserrao7@gmail.com , tresavinay@yahoo.com , chethu1977@gmail.com
DOI:
10.52711/2349-2996.2023.00064 
Address:
Ronita serrao, Thereza Mathias, Shivakumara. J
Laxmi Memorial College of Nursing, Balmatta, Manglore 575002.
*Corresponding Author
Published In:
Volume - 13,
Issue - 4,
Year - 2023
ABSTRACT:
Mental disorders are considered as invisible disorders as they are overlooked by patients, caregivers, health professionals, and policymakers yet cause significant health burdens. People with mental illness are subjected to high levels of stigma and discrimination because of widely held misconceptions about the causes and nature of mental illness. varies from 43% to 83%. Stigma and discrimination can occur in one or the other form. The co-occurrence of five components of stigma includes labelling, stereotyping, separation, status loss, and discrimination”. Literature identifies different types of mental health-related stigma, including self-stigma, public stigma, professional stigma, and institutional stigma. Stigma in mental illness is a serious social problem that has a multitude of consequences on the individual concerned and his or her family. This paper throws light on the extent, problems associated, consequence and strategies to overcome stigma and burden among family caregivers so that the family members consider mental illness as disease which requires treatment.
Cite this article:
Ronita serrao, Thereza Mathias, Shivakumara. J. Stigma and Discrimination of family care giver's (FCG) – A Barrier in mental illness: Scoping Review. Asian Journal of Nursing Education and Research. 2023; 13(4):312-6. doi: 10.52711/2349-2996.2023.00064
Cite(Electronic):
Ronita serrao, Thereza Mathias, Shivakumara. J. Stigma and Discrimination of family care giver's (FCG) – A Barrier in mental illness: Scoping Review. Asian Journal of Nursing Education and Research. 2023; 13(4):312-6. doi: 10.52711/2349-2996.2023.00064 Available on: https://ajner.com/AbstractView.aspx?PID=2023-13-4-14
REFERENCE:
1. Jayasankar, Pavithra; Manjunatha, Narayana; Rao, Girish N, Gururaj, Gopalkrishna, Varghese, Mathew; Benegal, Vivek NMHS India National Collaborator Group. Epidemiology of common mental disorders: Results from “National Mental Health Survey” of India, 2016. Indian Journal of Psychiatry. 2022; 64(1): 13-19 | DOI: 10.4103/indianjpsychiatry.indianjpsychiatry_865_21.
2. Rita Phillips, Mark Durkin, Hilary Engward, Graham Cable, Maria Iancu, The impact of caring for family members with mental illnesses on the caregiver: a scoping review, Health Promotion International. 2022; daac049, https://doi.org/10.1093/heapro/daac049.
3. Charlson F, van Ommeren M, Flaxman A, Cornett J, Whiteford H, Saxena S. New WHO prevalence estimates of mental disorders in conflict settings: a systematic review and meta-analysis. Lancet. 2019; 394(10194):240–248. doi: 10.1016/S0140-6736(19)30934-1.
4. Reddy VB, Gupta A, Lohiya A, Kharya P. Mental Health Issues and Challenges in India: A Review. Int J Sci Res Publ. 2013; 3: 2250–3153.
5. Ong HS, Fernandez PA, Lim HK. Family engagement as part of managing patients with mental illness in primary care. Singapore Med J. 2021; 62(5):213-219. doi: 10.11622/smedj.2021057.
6. Aakansha S, Mattoo S, Grover S. Stigma associated with mental illness: Conceptual issues and focus on stigma perceived by the patients with schizophrenia and their caregivers. Indian J Soc Psychiatry. 2016; 32(2):134-42. DOI: 10.4103/0971-9962.181095.
7. Pandey S. Perception of stigma among caregivers of mentally ill people. Nepal Med Coll J. 2019; 25; 21(3):184-9.
8. Malhotra M. Burden among caregivers of mentally- ill patients : a review. Int J Multidiscip Curr Res. 2016; 4: 109–118.
9. Nxumalo CT, Mchunu GG. Exploring the stigma related experiences of family members of persons with mental illness in a selected community in the iLembe district. KwaZulu-Natal Health SA Gesondheid. 2017; 22: 202–212. doi: 10.1016/j.hsag.2017.02.002.
10. Goffman E Stigma: Notes on the Management of Spoiled Identity. 1963 New York Simon and Schuster.
11. Subu, M.A., Wati, D.F., Netrida, N. et al. Types of stigma experienced by patients with mental illness and mental health nurses in Indonesia: a qualitative content analysis. Int J Ment Health Syst 15, 77 (2021). https://doi.org/10.1186/s13033-021-00502-x
12. Alvarez-Galvez J, Salvador-Carulla L. Perceived discrimination and self-rated health in Europe: evidence from the European social survey (2010). PLoS One. 2013;8:e74252.
13. Corrigan PW. Mental health stigma as social attribution: Implications for research methods and attitude change Clin Psychol Sci Pract. 2000;7:48–67
14. Saxena S, Thornicroft G, Knapp M, Whiteford H. Resources for Mental Health: Scarcity, inequity, and inefficiency. Lancet. 2007; 370: 878–89.
15. Srinivasan TN, Thara R. Beliefs about causation of schizophrenia: Do Indian families believe in supernatural causes? Soc Psychiatry Psychiatr Epidemiol. 2001; 36: 134–40.
16. Chan M. Mental health and development: targeting people with mental health conditions as a vulnerable group. Geneva: World Health Organization; 2010.
17. Tesfaw, G., Kibru, B. and Ayano, G. Prevalence and factors associated with higher levels of perceived stigma among people with schizophrenia Addis Ababa, Ethiopia. Int J Ment Health Syst 14, 19 (2020). https://doi.org/10.1186/s13033-020-00348-9.
18. Lee S, Lee MTY, Chiu MYL, Kleinman A. Experience of social stigma by people with schizophrenia in Hong Kong. Br J Psychiatry. 2005; 186: 153–157.
19. Gao S, Philips M, Wang X, Xu D, Jia Z, et al. Experience of stigma among patients with schizophrenia and their family members and attitudes of different groups about this stigma. Chinese Ment Heal J. 2005; 19: 82–86.
20. Venkatesh BT, Andrews T, Mayya SS, Singh MM, Parsekar SS. Perception of stigma toward mental illness in South India. J Family Med Prim Care. 2015; 4(3): 449-53. doi: 10.4103/2249-4863.161352.
21. Manesh AE, Dalvandi A, Zoladl M. The experience of stigma in family caregivers of people with schizophrenia spectrum disorders: A meta-synthesis study. Heliyon. 2023; 5; 9(3): e14333. doi: 10.1016/j.heliyon.2023.e14333.
22. Ahmedani BK. Mental health stigma: society, individuals, and the profession. J Soc Work Values Ethics. 2011; 8: 1–4.
23. Yanos PT, Lucksted A, Drapalski AL, et al. Interventions targeting mental health self-stigma: a review and comparison. Psychiatr Rehabil J. 2015; 38: 171.
24. Umesh G, Asokan TV, Roselin V, et al. Cross-sectional study on stigma among care givers of patients with mental illness in Kanchipuram district, Tamil Nadu. J Evid Based Med Healthc 2021; 8(28): 2484-2488. DOI: 10.18410/jebmh/2021/460
25. Sharma, N., Chakrabarti, S. and Grover, S. Gender differences in caregiving among family-caregivers of people with mental illnesses. World Journal of Psychiatry. 2016; 6: 7.
26. Akbari, M., Alavi, M., Irajpour, A. and Maghsoudi, J. Challenges of family caregivers of patients with mental disorders in Iran: a narrative review. Iranian Journal of Nursing and Midwifery Research. 2018; 23: 329–337.
27. Norris, D., Eichler, M., Cramm, H., Tam‐Seto, L. and Smith‐ Evans, K. Operational stress injuries and the mental health and well‐being of veteran spouses: a scoping review. Journal of Family Theory and Review. 2018; 10: 657–671
28. Wainberg ML, Scorza P, Shultz JM, Helpman L, Mootz JJ, Johnson KA, Neria Y, Bradford JE, Oquendo MA, Arbuckle MR. Challenges and Opportunities in Global Mental Health: a Research-to-Practice Perspective. Curr Psychiatry Rep. 2017; 19(5): 28. doi: 10.1007/s11920-017-0780-z.
29. Dijkxhoorn MA, Padmakar A, Bunders JFG, Regeer BJ. Stigma, lost opportunities, and growth: Understanding experiences of caregivers of persons with mental illness in Tamil Nadu, India. Transcultural Psychiatry. 2023; 60(2): 255-271. doi:10.1177/13634615211059692.
30. Government of India. New Pathways, New Hope: National Mental Health Policy of India New Delhi, India: Ministry of Family Welfare, Government of India (GoI); 2014.
31. Monnapula-Mazabane P, Petersen I. Mental health stigma experiences among caregivers and service users in South Africa: a qualitative investigation. Curr Psychol.
32. Khanal P. Perceived stigma among caregivers of mentally ill patient: A descriptive cross-sectional study. J Kathmandu Med Coll. 2021; 10(1): 43-6 DOI: https://doi.org/10.3126/jkmc.v10i1.38971.
33. Shrivastava A, Bureau Y, Rewari N, Johnston M. Clinical risk of stigma and discrimination of mental illnesses: Need for objective assessment and quantification. Indian J Psychiatry. 2013; 55(2): 178-82. doi: 10.4103/0019-5545.111459.
34. Bincy Kurian, Preeti Mathew, Bivin JB. Impact of Having a Family Member with Major Mental Illness: Do there exists Differences perceived among Spouse- and non-spouse family members? Asian J. Nur. Edu. and Research. 2017; 7(2): 163-167. doi: 10.5958/2349-2996.2017.00033.7.
35. Manju. T (Sr), Merlin Mary Augustine, Mini T. K, Preethy Jose (Sr) Princy Mathew (Sr), Chanu Bhattacharya, Rajeeve Mathew. Knowledge on early warning Signs and home care Management of mental Illness among care givers of People with Mental Illness in A Selected Hospital at Mangalore, Karnataka. Asian J. Nursing Education and Research. 2018; 8(3): 389-394. doi: 10.5958/2349-2996.2018.00080.0.
36. Gurjeet Kaur, Rajwant Kaur. A descriptive study to assess the knowledge about misconceptions regarding mental illness among the people attending the psychiatric OPD, SGRD, Hospital Amritsar. Asian J. Nursing Education and Research. 2018; 8(4): 559-560. doi: 10.5958/2349-2996.2018.00112. X.
37. Nirmala V., G. Madavi latha. Assess Burden, Social Support, and Family Wellbeing among Caregivers of Mentally Ill Patients at Institute of Mental Health, Erragadda, Hyderabad, and Andhra Pradesh. Asian J. Nur. Edu. & Research. 2011; 1(2): 64-67.
38. Josephine Gracia Britto, Ramachandra. Relapse Prevention among Caregivers of Patients with Schizophrenia. Asian J. Nur. Edu. & Research. 2014; 4(1): 140-144.
39. Leena Sharma. A Descriptive Co-relational study on Burden, Social Support and Family Wellbeing among Caregivers of Mentally Ill Patients in Mansik Aarogayashala, Gwalior (M.P.). Asian J. Nur. Edu. and Research. 2017; 7(2): 228-230. doi: 10.5958/2349-2996.2017.00047.7.